The Situation of Families and Communities

As families and communities profoundly affect the children and young people growing up in them, the situation facing families and communities influences the situation facing children and young people . See also the situation facing countries and regions.

Key points about the situation affecting families and communities are that:

1. Families and communities remain the main caring environment for most children. Wherever possible siblings within one family should stay together.

2. HIV/AIDS is dramatically increasing the burden of care in families and communities. This burden falls mainly on women.

3. The nature of HIV/AIDS and the way it is spread means that HIV diagnosis can provoke tensions within family relationships.

4. The emergence of child-headed households in rural Africa is a new phenomenon as a result of HIV/AIDS. It shows the strain being placed on extended families and communities.

The impact on families

There are many ways in which HIV/AIDS affects families, including:

  • Increased need for care within families affected by HIV/AIDS-related illness and death. This burden of care falls mainly on women and children.
  • Accusations about who is to "blame" for the illness entering the family and any subsequent deaths. Because of the ways in which HIV/AIDS spreads, this may place severe strain on marriage and other family relationships.
  • "Sibling separation" of children orphaned by HIV/AIDS. This may occur in order to allow the extended family to cope with the physical needs of the remaining children more effectively. However, this is often against the wishes of both sick parents prior to their death and of the children.
  • Disputes over inheritance of property and rights and responsibilities in relation to orphaned children.

Strains on traditional practices

In many communities, for example in Africa, traditional practice has been for orphaned children to be absorbed into the extended family. However, HIV/AIDS has been putting considerable strain on this approach. In some cases it has been unable to cope due to:

  • The sheer number of children having to be cared for by the extended family.
  • Loss of active adults able to share the burden of this form of care.
  • The economic cost of providing such care combined with increasing poverty in communities as a result of HIV/AIDS.
  • Increasing individualism and the nuclear nature of families as a result of adopting Western lifestyles, particularly in urban settings.
  • Taboos associated with wills and planning for death. Parental wishes expressed prior to death carry a great deal of weight in many cultures. However, these wishes are often not spoken or written down.

Families and households

Many people use the terms families and households as if they were the same thing. However, this is not the case. In many countries, families are very extensive and include all people that a person is related to, not just those that they live with. A household can be defined as a group of people who live and eat together.

Child-headed households

These are households which are "headed" by a child, often an older child/young person. These have been widely documented in families affected by HIV/AIDS, particularly in rural areas and are often taken as a sign of severe strain on the ability of the extended family to cope. However, they could be considered an extension of the extended family/community coping mechanisms, as many of these households report supportive contact with members of the extended family.

Other social and economic changes

Changes reported as a result of the impacts of HIV/AIDS on children, families and communities include increased numbers of street children and street vendors. In addition, it has been documented that HIV/AIDS can have a severe economic impact on poor families within a community, even if there is no-one within the family infected with HIV. In situations where poor people survive by providing wage labour for richer community members, HIV within the richer families may mean they require less wage labour. This can have a devastating economic impact on poorer families.

Resources

HIV/AIDS and work: global estimates, impact and response (eng)

This report outlines the impact of HIV/AIDS to the economy and the gender differentials in HIV infection and how this plays a major role in influencing child labour.
ILO, 2004, PDF, 6 pages, 328 kb.

The State of the World's Children (eng)

This document reports on the lives of women around the world making connections of gender equality and the lives of children and how these go hand in hand.
UNICEF/Unite for Children, 2007, PDF, 160 pages, 1843 kb.

Children Affected by HIV/AIDS: Rights and Responses in the Developing World (Eng)

This paper is number 23 in a series of SCF working papers. It sets out to examine the situation of children affected by HIV/AIDS living in resource poor countries, and to analyse the nature of the responses by households and communities, programming organisations, governments and donors.
Grainger, C., Webb, D. and Elliott, L., SCF, 2001, PDF, 128 pages, 1155 kb.

From Single Parents to Child-Headed Households: The Case of Children Orphaned by AIDS in Kisumu and Siaya Districts (Eng)

This UNDP paper looks at the situation of children orphaned by AIDS in Kenya.
Ayieko, M.A., UNDP, PDF, 30 pages, 318 kb.

The Impact of HIV/AIDS on Poor Urban Livelihoods in Gitega Town, Burundi (Eng)

This one year study by Save the Children UK in Burundi sought to examine the impact of HIV/AIDS on household livelihoods. 
Roudy, G., Nkurikiye, W. and Niyongabo, C., Save the Children, 2001, PDF, 30 pages, 448 kb.

A Review of Current Literature of the Impact of HIV/AIDS on Children in Sub-Saharan Africa (Eng)

This excellently-referenced article was published in AIDS 2000 Year in Review and provides a clear and concise summary of many of the issues relating to children and HIV/AIDS in Africa.
Foster, G. and Williamson, J., FACT/DCOF, 2000, PDF, 21 pages, 65kb.

The Impact of HIV and AIDS on Children, Families and Communities:Risks and Realities of Childhood during the HIV Epidemic (Eng)

This is one in a series of issues papers produced by UNDP. It starts with a general introduction and then explains that today's young people are the first that have grown up in a world of AIDS.
Lyons, M., UNDP, PDF, 10 pages, 176 kb.

Impact of HIV and AIDS on families and children (Eng)

This document is the personal story of how HIV/AIDS has affected one Zambian woman and her family.
Nyirenda, C., UNDP, 1996, PDF, 4 pages, 145 kb.

The White Oak Report: Building International Support for Children Affected by AIDS (Eng)

This document reviews the scale of the AIDS epidemic, its psychosocial effects on children and its impact on families and communities.
Levine, C. and Foster, G., The Orphans Project, 2000, PDF, 6 pages, 140 kb.

Adult Illness and Death, Taking in of Orphans: Impact on Households (Eng)

This is a clear and concise report of a study conducted in South Africa to look at the effects of adult illness and death on household livelihoods.
Desmond, C., University of Natal, 2002, PDF, 8 pages, 205 kb.

Young AIDS Migrants in Southern Africa: Summary (Eng)

This brief paper is a summary of a longer report. It is based on experiences in Lesotho and Malawi and focuses on the effects HIV/AIDS is having in regard to migration of young people in the region.
Ansell, N. and Young, L., Brunel University, 2002, PDF, 2 pages, 64 kb.

Young AIDS Migrants in Southern Africa: Full Report (Eng)

This full report is also available as a summary. It is based on experiences in Lesotho and Malawi and focuses on the effects HIV/AIDS is having in regard to migration of young people in the region.
Ansell, N. and Young, L., Brunel University, 2002, PDF, 24 pages, 64 kb.

Assessment of the impact of HIV/AIDS on household economy, Arua District, Northern Uganda, Interim Report (Eng)

This is a report of a study conducted in Uganda which aimed to test a new way of assessing household level economics. 
Petty, C., Seaman, J., Acidiri, J. and Knox Peebles, C., SCF, 2001, PDF, 57 pages, 659 kb.

A Generation at Risk: AIDS Orphans, Vulnerable Children and Human Security in Africa (Eng)

This paper was first presented at a conference in Uppsala in September 2001. It approaches issues affecting children oprhaned by HIV/AIDS from an interesting, and perhaps unique, perspective, that of 'security'. 
Schonteich, M., Institute for Security Studies, 2001, PDF, 10 pages, 104 kb.

AIDS, Public Policy and Child Wellbeing: Chapter 8: HIV/AIDS and Children in the Sangli District of Maharashtra (Eng)

This document of a major publication is the eighth chapter and is the seventh of eight country case studies. This one looks at India focusing on a study of three types of households in Maharashtra.
Verma, R.K., Salil, S., Mendonca, V., Singh, S.K., Prasad, R. and Upadhyaya, R.B., UNICEF, 2002, PDF, 53 pages, 178 kb.

The Social Consequences of HIV/AIDS in Uganda (Eng)

This is an early report on the situation facing orphans in Uganda based on a study conducted in 4 districts of Uganda.
Dunn, A., Hunter, S., Nabongo, S., and Ssekiwanuka, J., SCF-UK, 1992, PDF, 21 pages, 193 kb.

Community Perceptions of Orphan Care in Malawi (Eng)

This paper documents the results of the "Starting from Strengths" research project which was started in Malawi in 1997.
Ali, S., Chancellor College, Malawi & SCF.

The AIDS Emergency: The Toll on Women and Children (Eng)

This paper, written by the Ugandan Minister of Gender, Labour and Social Development, argues that HIV/AIDS remains a significant problem globally despite advances made on treatment. 
Mukwaya, J., 1999, PDF, 16 pages, 217 kb.

Education and HIV/AIDS: Ensuring Education Access for Orphans and Vulnerable Children: A Training Module (Eng)

This module has been developed for the training of key stakeholders within the education sectors of World Bank client countries, nongovernmental organizations, and church-based groups involved with interventions to benefit children orphaned by AIDS and other vulnerable children.
UNICEF/World Bank, 2002, PDF, 101 pages, 1322 kb.